HOME AGAIN!

Over a month since Kaitlin has slept in her own bed and we are having a few teething problems (literally and figuratively speaking) settling back in. She has been howling any time Daddy comes near her which is reallu upsetting for Wayne. She slept maybe an hour last night, vomitted in her cot(which she shouldn't be able to do after the stomach wrap. The vomit had a bit of blood in it, which has us worried and she is having a lot of deep blue-spells. We are trying to be positive - it was major surgery and her routine has been terribly disrupted, but it is awful for her and disheartening for us. We always wait for the day that all of this will get easier and it just doesn't seem to come. The surgery has left her way behind physically and Wayne and I talked briefly today about how high our expectations have been for Kaitlin and how we thought that with enough time, work and love on our part we thought we could help this wee girl achieve miracles. We haven't given up, it's just that it seems like 3 steps forward then 5 steps back at times. She is so far behind in her physical development now that on a bad day I feel like no matter what I do, her body is never going to obey her to do even the simplest of things. On a good day, I feel that we just haveto try, try, try and eventually Kaitlin will turn a corner and be able to tell her body what to do. She is still here though, still cheeky, and happy (most of the time) and so loved by so many people, especially her mummy and daddy, and that is the main thing and what will keep her and the two of us going strong and moving forward every day with hope and determination.